I’m Tired

I’m tired.

I think that’s why this election, this result, is hitting me so hard.

I believed that, in Hillary Clinton, my family would have a true advocate in the White House.

She values and supports families like ours. Her inclusion of people with disabilities at the Democratic Convention and in her platform was not just politics. She is a true supporter of families and of those with disabilities and has been for a long time in her career.

So, I was hopeful that we could have a president who sees us, who hears us. Who “gets” us. Read More


World Autism Awareness Day 2015

In 2008, the United Nations General Assembly declared April 2 as “World Autism Awareness Day” to encourage all of its member states and the international community to heighten public awareness about autism. Supported by the Convention on the Rights of Persons with Disabilities which came into force the same year, the United Nations promotes a vision of universal human rights for all persons with disabilities and aims to “foster an inclusive and caring society for all and to ensure that all children and adults with autism can lead full and meaningful lives.”

The theme for World Autism Awareness Day 2015 is “Employment: The Autism Advantage.”

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Today, the United Nations has launched a “Call to Action” encouraging business leaders and employers to make a commitment to offering employment opportunities to autistic people. You can download the PDF version of this Call to Action here.

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Think Globally – World Autism Awareness Day – 4-2-14

In 2007, the United Nations General Assembly unanimously declared April 2 as World Autism Awareness Day, aiming to promote the rights and well-being of the autistic around the world.

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While we who are already “aware” of autism get worn out sometimes by “awareness” campaigns, today’s message from United Nations Secretary-General Ban Ki-moon reminded me of an important international campaign that deserves our attention here at home: Read More

The End Game

“Look up, buddy.  Look to the door, not at the ground.  See where you’re going.”

Each morning, as my son walks from my car to the front door of his school, he sweeps the sidewalk with his feet, kicking aside anything that clutters the smooth pavement.  He’s been working hard to practice looking forward so he doesn’t get bogged down by every rock that disrupts his clear path from here to there.

In his IEP meetings, too, the educational team charged with selecting his goals and helping him to achieve them, has been picking at all the little spots in his current plan.  I have binders full of reports that tell me what my child can’t do.  We scour the data to generate lists of target goals.  Sifting through the deficits to be remediated and sensory needs to be accommodated, we try to prioritize and maximize my son’s time at school. Read More