Well, It’s Like This

Hi Quirky followers!

An announcement and a request – I’m making a change and would love for you to join me.

I’ve been writing on and off here on Stay Quirky, My Friends since April 2012, and it has been so valuable to me. 

But lately, I’ve been reducing my time on social media and online in general, and that has been hugely valuable to me as well. 

I’m forever grateful that you’ve liked reading my posts over these past almost 9 years (?!), because writing them has helped me connect with and understand my kid in a myriad of ways.

It’s why I come back to this space even after going silent for weeks or months at a time.

I still have things to write (and tell you) about what life is like over here…but I’m feeling the need to change things up.

So, beginning in March 2021, I will be trying out a new platform for my writing on Substack. It’s an email-newsletter service that will allow me to get out from under online ads, WordPress complications, Facebook algorithms, clicks and hashtags – and just simply write to you.

If you want to follow my writing, you can subscribe here, for free. You’ll get an email from me every couple of weeks (hopefully!). Or, if you’d rather not subscribe, you can follow along (and comment) on my Substack page: itslikethis.substack.com.

I’m not sure how this is all going to work yet.

But my plan is to launch “It’s Like This” in early March and get into a regular groove of posting something about what it’s like around here every other week. 

This Quirky page (and its corresponding FB Page) will stay up for a while until I figure out how best to archive it – but I won’t be posting any new content here. 

So, please consider subscribing to my emails on Substack to read my latest ramblings! 

Hopefully, I’ll see you there!



Back in the Saddle

This blog has, once again, fallen silent for a time.

Life happens and I don’t write fast enough for my words to maintain their truth.

I almost had a new post ready a few months back. 

I had my foot in the stirrup, swinging my leg up to mount a high horse and wave a banner of “different not less.”

But just when I was about to post about “my life is not harder than yours just because of my kid’s diagnosis,” that horse kicked up and sent me sprawling.

I sat in the dust, trying to catch my breath, as the reappearance of injurious outbursts and unpredictable moods made all my positive words ring false.

I watched my “disability does not equal tragedy” beliefs gallop away. The muzzle of an old mule nudged me in the back. She offered to carry me on with worry and fear and pity for myself and for my kid. Exactly the way some people think I should feel in our situation.

But that ride didn’t feel comfortable either.

So I traced lines in the dirt for awhile and rode neither.

That’s the thing. Raising this kid, this young man, is never one or the other.

It’s not happily accepting disability and appreciating all the quirky differences that come with it.

It’s not struggling for answers to alleviate his pain and pining for some semblance of a “normal” and safe life.

It’s both. And more.

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For What It’s Worth

So here it is February, and this is my first post of 2016.

That pretty much sums up life in this house lately.

Things have been so erratic and unpredictable around here, it’s hard to be an effective parent, much less write about it with any semblance of order or theme. Every day seems to bounce in a different direction than originally projected. When sleep is disturbed and his anxiety is high, I expect the worst; yet he laughs on through. Then, a day begins well enough for me to envision smooth sailing; yet by evening we’ve crashed and burned.

I’m finding it more and more difficult to write as a parent-blogger. I don’t write fast enough to keep up with the variations. I might start a post in the morning, and before it’s polished, the mood, the atmosphere, the energy has changed and whatever I thought I was going to say no longer feels authentic.

But this volatility is all authentic. This is what it feels like to parent this kid right now.

I have another draft almost ready to go, it’s just a short little nothing piece. An exercise to get back in the habit of writing, which I’ve been trying to do since the New Year began. But the winds shifted before that draft was ready to post, and now it may have to wait. Or join the others in the virtual scrap heap. It just doesn’t feel true at the moment.Death_to_stock_communicate_hands_2 Read More


My son is screaming in the other room, and I’m thinking about silence.

Not the literal type of silence, although I could use a little bit of that right now. I’m thinking about the stories we choose to tell and the ones that remain unwritten.

I’m thinking about the silences – intentional and unintentional – that shape what our history becomes. What gets remembered and what is forgotten.

I was planning to share a nice story of a boy and a horse, but that moment of success is being pre-empted. Today there is crying and screaming, and it doesn’t feel genuine to write about that good experience while ignoring this definitely not-good one.

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