Can You Hear Me Now?

It takes a certain amount of skill and creativity to communicate successfully with this kid. We incorporate multiple strategies to explain things to him – simplified language, repetition, verbal cues, written cues, social stories…the list goes on.

But there’s someone who works even harder than us to make that connection. Someone who lives under the daily pressure of being unheard or misunderstood. That’s my kid.

This past Sunday, he gave us a new demonstration of just how tenacious he can be when he wants us to understand him.

He was relentless. This boy was on a mission to explain his needs and persuade us to respond positively.

Unfortunately, this was a case where we already understood exactly what he wanted. The outcome was just out of our control. 

It all started when we had to say “no” to an expected part of his weekend.

***

Read More

Your Current Wait Time Is…

It’s your life
And you can do what you want
Do what you like
But please don’t keep a-me waiting
Please don’t keep a-me waiting
‘Cause I’m 
So tired
Tired of waiting
Tired of waiting for you
        —The Kinks

“C’mon, I’m standing here like a doofus waiting for you.”

This phrase, or some variation of it, is said multiple times a day in this house.

My husband and I are the doofuses.

My son is the one we are waiting for. Read More

Not a Bad Word

When I was in 4th or 5th grade, my best friend and I created a list of secret swear words.

These were made-up words, each corresponding to a real curse word—the ones we weren’t allowed to say.

Bad Words-M&R photo

…but we were so cute!

I don’t remember using our secret swears in front of other people, we’d mostly just “curse” at each other and crack up at our clever defiance of little girl rules. It made for endless hours of inside-joke silliness. We even made them into a song. We would belt out this nonsense-word melody while walking to school, confident that no one knew we were actually singing a litany of really rude things. We thought it was hilarious. (Sorry, Mom) Read More