At first glance, it doesn’t seem like January 1, 2018 is all that different from January 1, 2017 for us. We’re still plugging along on all of the same things, still working the same issues, still in familiar places and routines, scripting the same old movies.
But, in reality, life has shifted quite a bit from this time last year.
We’ve been focused for many years at school and home on increasing our son’s independent “life skills.” But with the end of traditional school looming ever closer, we’re even more aware of the importance of teaching him how to do things on his own, helping him find success in completing daily tasks, and in being as independent as possible.
In turn, I have to learn how to get out of his way.
As I’ve said before, I’m fully aware that my kid has “mom-enabled” deficits. I try not to do too much for him, but I don’t always succeed. Sometimes it’s because we are rushing to get somewhere and it’s easier for me to just DO all the things. Sometimes he is debilitated by anxiety and inability to communicate, and I’m doing what I can to lower his stress, which is clearly not the right time to add in a skill lesson.Read More
The Secretary-General encourages us to “all play a part in changing attitudes toward persons with autism and in recognizing their rights as citizens, who, like everyone else, are entitled to claim those rights and make decisions for their lives in accordance with their own will and preferences.”
It is a call to “ensure that all people can contribute as active members to peaceful and prosperous societies” and for everyone to “make available the necessary accommodations and support to persons with autism. With access to the support they need and choose, they will be empowered to face the key milestones in every person’s life, such as deciding where and with whom to live, whether to get married and establish a family, what type of work to pursue, and how to manage their personal finances.”
And here we are, preparing to demonstrate before our local superior court that our son is in need of our full legal guardianship, that he does not have the ability to make those key decisions about his life, and that we need to be granted the authority to make those decisions on his behalf.Read More
I think that’s why this election, this result, is hitting me so hard.
I believed that, in Hillary Clinton, my family would have a true advocate in the White House.
She values and supports families like ours. Her inclusion of people with disabilities at the Democratic Convention and in her platform was not just politics. She is a true supporter of families and of those with disabilities and has been for a long time in her career.
So, I was hopeful that we could have a president who sees us, who hears us. Who “gets” us.Read More