Opening Doors

[Writer’s note: This is one of the first full essays I wrote about my kid. It’s an old story from ten years back now, and is still one of my favorite memories.]

Standing on my back patio, I watch my five-year-old son through the sliding glass door. He bounces around the kitchen on his large blue exercise ball, happily unaware that he has just locked his mother out of the house.

Opening Doors_lockHe didn’t mean to lock me out. I stepped out—just for a moment—to throw something away, and I left the door open. After I went around the corner of the house, my son simply returned the door to its “normal” state: closed, with the latch pointed down. That’s how the handle always looks from the inside. Like many other autistic people, my child exhibits a keen awareness of his surroundings, and tends to “fix” things that he deems out of place. Lights on that should be off, books rearranged on shelves, doors that must be closed, and latches returned to their down and locked positions.

“Unlock the door, hon,” I say, shaking the handle. He rolls his ball over to the door and presses his palms against the glass. He grins at me and sits back down on his ball. I instruct him: “Pull up,” and mime lifting the latch. He slides off the ball and copies my hand motions in the air, his fingers hovering inches from the handle.

“OPEN DOOR, B__,” I demand, failing in my attempt to keep the growing worry out of my voice. My son laughs and repeats, “Open door, B__!” But he does not understand.

It all comes down to this—all the hours of behavioral and speech therapy, doctors’ appointments, IEP meetings and filing cabinets full of data sheets and treatment goals. If my son founders on a simple instruction to unlock the door, what does it matter if he knows his colors, his shapes? If he can recite the alphabet forwards and backwards? What does it matter if he expands his limited verbal ability to place “I want” before a request for juice or a cookie, if he fails to comprehend my words when danger looms?

Opening Doors_keys

I run across the street to my neighbor’s house to call my sister-in-law, the only person with a spare key since my husband is out of town. Her phone goes to voice mail. I race back home, convinced that my son is either upset by my absence or getting himself into some kind of trouble. I find him perfectly content in the air-conditioned house, bouncing on his ball near the kitchen table, taking bites of his lunch. Dear God, please don’t choke.

I go back to my neighbor’s house to call a locksmith, cursing myself for not hiding a key outside. The locksmith estimates his arrival at twenty minutes. How many things can go wrong in twenty minutes?

B_ball_2003_2I return to my patio to wait where I can watch my kid behind glass, trying every so often to get him to let me in. From my isolated vantage point, the newly exposed hazards of my once-child-safe kitchen mock me. I begin to strategize. Which window will I break if he grabs that sharp knife off the counter, or if he climbs up on the still-warm stove? Can I throw this metal patio chair hard enough to break the glass if he falls off that damned ball and cracks his head on the hard tile floor? Oblivious to the threats that surround him, my son laughs and bounces and taps on the glass between us.

Just as I reassure myself that at least I can keep an eye on him, my kid leaves the room. He runs into my bedroom where, of course, the window shades block my view. I cannot see him, but I hear him jumping on the bed, a favorite pastime that I instantly redefine as reckless. He yells, “Jumponthebed!”—one of the rare times he calls for me to play. I stand helpless to respond.

Then it happens. My son reappears, running into the kitchen and over to me at the door. He pulls on the handle, notices the latch and—without hesitation—flips it up and slides the door open. I am stunned by the speed at which my dilemma evaporates. My kid, in turn, looks bewildered by his mother’s enthusiastic and borderline hysterical response. I cry and hug and sigh and he just smiles, as if to say: It’s about time, Mom, what were you doing outside for so long?

It is not always about ability. More often it is about motivation. My child could easily learn how to unlock the door; he just needed a reason. People with autism spectrum disorders sometimes find it difficult to see the world from another’s perspective—my need to get inside, to get past that locked door, didn’t concern my son. Until it became his need.

Years later, this experience still shapes my interactions with my child. Of course, we moved the goal of teaching the instruction “unlock” to the top of the priority list (and yes, we now hide a spare key). But, the most important thing I can do is to give my son ample reason and motivation to use and strengthen his abilities; to discover what will entice him to open the doors that stand between us, waiting to be unlocked.

jumponthebed!!!

jumponthebed!!!

 ***

This piece, originally posted on Stay Quirky in May 2012, also appears in this beautiful anthology:

Monday Coffee & Other Stories of Mothering Children with Special Needs

(Darolyn “Lyn” Jones and Liz Whiteacre, eds.)

***

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4 comments

  1. Full Spectrum Mama · May 28, 2014

    TOTALLY AGREE ON THIS ONE. I always tell my G he can DO anything.,.The issue is, does he care to??? His values are “different” — but then so are mine. While we mothers draw the line at SAFETY, sometimes our kids don’t. that’s when it’s SO hard. Argh. Anyway, nice post and happy ending, so to speak…

    • stayquirkymyfriends · May 29, 2014

      Yes! When he cares, he gets it. When he doesn’t? Meh. I spend a lot of time trying to explain the “why” of certain things – which is interesting too, since it makes me reconsider, wait, why DO we do this? Why does he need to learn this? If it’s a safety thing, we stick to it… Thanks for visiting!

      • Jennifer Brunton · May 29, 2014

        Hah…YES, why DO we do certain things? Spectrum-y myself, I learned most of it as “rules” – as an old bag now I do question many of them. Still, as we are agreeing, safety stuff’s gotta stay non-meh… somehow!!!!!!

      • stayquirkymyfriends · May 29, 2014

        Seeking the non-meh response, that’s my goal as a parent, haha. 🙂

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